Have an upcoming genetic doctor appointment and I am nervous. Hoping to get the paperwork I need before the appointment and from there will see if I need to get a spinal done as my cousin has had to do regarding her type of mutation. She may be involved in a study and if I have the same makes me wonder if I will become a part of the study as well. Nervous about having to discuss that I am starting to notice certain traits in my kids that may be early signs/symptoms of mitochondrial disease, which worries me greatly. Keeping a positive attitude and taking this all in stride is about the only thing I can do right now to keep my sanity.
God Bless,
Christina
