Hello,
I am a proud momma of two and am a sufferer of mitochondrial disease. This is a blog to share my experiences, my hopes, my fears, and also hopefully to help others who are suffering from this disease. I have had a very rough last year and half since my mito has progressed, and it has been a true test of my faith and strength.
I started having very severe fatigue and muscle tremors after getting the stomach flu. Little did I know that I had a genetic disease in which that if you get sick from the flu, have surgery, other extensive things to your body, that people with mito, this is very bad for our system, and can make your symptoms that much worse. So after several visits to different doctors, which I will share later, I found a genetic doctor who has helped me. I also have had tremendous help from my cousin who suffers from mito as well, her doctor was the first to mention mito to her. So between her and my genetic doctor, I have been on the path of discovery.
Many days are very hard for me, either from pain or fatigue, or from general self despair of the fact that I will never again be the crazy energetic mom I used to be and that my life will never be again without this disease. I am trying to learn and grow from this. I hope as I write, many of you will want to share along with me, and hopefully we can get more research and support for this disease.
God Bless,
Christina Frisz
I'm waiting on the muscle biopsy results right now, and the Neuromuscular specialist thinks it may be Mito. You might like to read some of my Day by Day with a Movement Disorder blog posts. I look forward to more of your posts. When you've been blogging a little longer I'll add you to my sidebar.
ReplyDeleteThis will be great therapy and great for people who may think they have mito or have mito...i also started a website about my journey missyleone.com...how it all began.
ReplyDeleteMissy